Caring for critically ill children in the glare of digital mediaBook now
Wednesday 1 May 2019
9.15am - 5.15pm
West Downs Quarter, Romsey Road, Winchester, SO22 5HT
This is the sixth Winchester Conference on Trust, Risk, Information and the Law #TRILCon19
This workshop explores the impact of social media on critically ill young children and their parents as well as professionals who work alongside them. It is of interest to a range of fields including, but not limited to, medicine, philosophy, law, sociology, anthropology, history, education, media and communication studies, medical humanities as well as those from the biomedical ethics community.
AIMS OF THE DAY ARE TO CONSIDER:
- the difficult ethical implications which arise when a critically ill child is the subject of a social media campaign.
- the impact of social media campaigns upon the care and privacy of critically ill young children.
- the ethical questions surrounding the exposure of intimate details about a child’s health via social media
- the impact on the privacy rights of the child.
- the impact of social media on the confidence of parents in the ability of medical professionals
- the role of social media in facilitating parents to explore treatment options abroad
- the ‘moral distress’ of medical professionals
- the public perception of the medical profession and the NHS
- the competing rights of parents, children, the press, medical professionals and the NHS
Full programme for the day can be found below.
Claire Bessant, Associate Professor in Law at Northumbria University.
Liam Berriman, Lecturer in Childhood & Youth Studies, University of Sussex.
Jo Bridgeman, Professor of Healthcare Law & Feminist Ethics, University of Sussex.
Peta Coulson-Smith, Senior Teaching Fellow in Clinical Ethics and Law, University of Southampton.
Malcolm Dowden, Legal Director at Womble Bond Dickinson (UK) LLP
Mark Gleeson, Partner in Data and Privacy team at Womble Bond Dickinson (UK) LLP
Katie Gollop QC, Barrister, Sergeant’s Inn.
Victoria Jaynes, Research Fellow in Digital Sociology/Humanities, University of Sussex.
Stephanie Nimmo, award-winnng writer, freelance journalist, marketing consultant, trainer, public speaker and campaigner.
Emma Nottingham, Senior Lecturer in Child Law and Medical Ethics, University of Winchester.
Helen Ryan, Senior Lecturer in Medical Law, University of Winchester.
Robert Wheeler, University Hospital Southampton.
Peter Wilson, University Hospital Southampton.
FEES AND BOOKING:
Nurses/AHP/students - £40
Doctors/Academics/lawyers/other - £60
There are a small number of free places available for those with no access to funds. Email firstname.lastname@example.org for details.
If you requre further information, please email email@example.com
PROGRAMME FOR THE DAY:
|9.30am||Welcome and introduction||Emma Nottingham|
|9.40am||Thirty years of cases concerning critically||Jo Bridgeman|
|ill children: from privacy to public interest|
|10.00am||The pros, cons and pressures of resolving||Katie Gallop QC|
|children's medical treatment disputes|
|under the meda spotlight|
|10.20am||Impossible decisions||Rob Wheeler|
|11.10am||Parents as privacy guardians?||Claire Bessant|
|11.40am||Documenting and displaying family in a||Victoria Jaynes, Liam Berriman|
|12.00||Generation tagged and the global||Helen Ryan|
|1.30pm||Perspectives from practice: GDPR, privacy and||Mark Gleeson, Malcolm Dowden|
|special catergory data|
|2.00pm||Keynote: Was this in the plan? How difficult||Stephanie Nimmo|
|conversatons helped me give my daughter a|
|3pm||Difficult decisions in paediatrics||Peta Coulson-Smith, Peter Wilson|
|3.30pm||The public life of critically ill children||Emma Nottingham|
|4pm||Roundtable discussion||All delegates|
|4.30pm||Feedback from roundtable discussions||All delegates|
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